I hope you are well. At 10:30am on Thursday (23 September) the High Court will be releasing their decision on Heidi Crowter and Máire Lea-Wilson's landmark case against the UK Government. We are going to be meeting at 9:30am outside the High Court to show support for...
Creating a world where people with Down’s syndrome are equally valued
latest media
our vision


We are a group of over 17,000 people with Down’s syndrome, their families and supporters who are actively working to build a United Kingdom (UK) where people with Down’s syndrome are equally valued and have an equal chance of being born.
Currently around 90% of babies found to have Down’s syndrome in the UK are aborted. This alarmingly high percentage is as a result of discriminatory legislation, policies and practice – as well as wider cultural attitudes towards life with Down’s syndrome.
our focus

We support the updating of UK legislation to ensure that babies with Down’s syndrome are not singled out by abortion law

We support a programme of medical reform to improve the delivery and quality of information and support provided to parents expecting a baby with Down’s syndrome

We highlight the negative impact that national screening programmes are having on increasing the number of babies that are screened out because they have Down’s syndrome.

We support reforms to UK legislation and policy to improve support and equality for people with Down’s syndrome and their families throughout their lives
media
Mum of identical Down’s syndrome twins says new NHS test is ‘genetic cleansing’
As the NHS offers a new Down’s syndrome blood test, mum of ‘one in a million’ Down’s twins, Emma Lowe, 36, of Preston, Lancashire says it will encourage more terminations "I’m sure every parent thinks their kids are one in a million, but my twin boys really are. When...
BBC Radio: Down’s syndrome test
BBC Radio interviews a mother from Wallingford along with Don't Screen Us Out spokeswomen Lynn Murray on cfDNA screening and the Don't Screen Us Out campaign. [vc_video link='https://youtu.be/fyWfh6xRM7E']
Down Syndrome People Face ‘Extinction’ Through Selective Abortions
A simple new blood test that greatly facilitates the detection of Down Syndrome in unborn children may spell the “extinction” of Down Syndrome people, an article in the Telegraph suggests, since around 90 per cent of those performing the test end up aborting their...
The Telegraph: Down’s Syndrome people risk ‘extinction’ at the hands of science, fear and ignorance
Society doesn't do enough to show women carrying a baby with Down's that the life inside them is precious, intelligent and capable of so much. A painting hangs in the Metropolitan Museum of Art, New York called The Adoration of the Christ Child. Created in the 16th...
Down’s Syndrome people risk ‘extinction’ at the hands of science, fear and ignorance
A painting hangs in the Metropolitan Museum of Art, New York called The Adoration of the Christ Child. Created in the 16th century by a Flemish artist, what stands out in this sublime presentation of the Nativity is the detail of the characters standing around the...
Screened Out of Existence: The Convention on the Rights of Persons with Disabilities and Selective Screening Policies
To view the full article in the International Journal of Disability, Community & Rehabilitation click here. Janet E. Lord Abstract The adoption of the Convention on the Rights of Persons with Disabilities introduces a disability narrative into the human rights...
Convention on the Rights of Persons with Disabilities – Full text
Preamble The States Parties to the present Convention, Recalling the principles proclaimed in the Charter of the United Nations which recognize the inherent dignity and worth and the equal and inalienable rights of all members of the human family as the foundation of...
PRESS RELEASE: Down Syndrome advocates launch ‘Don’t Screen Us Out’ campaign urging government to halt new screening proposal
PRESS RELEASE – FOR IMMEDIATE RELEASE DOWN SYNDROME ADVOCATES LAUNCH 'DON’T SCREEN US OUT' CAMPAIGN URGING GOVERNMENT TO HALT NEW SCREENING PROPOSAL The number of babies with Down Syndrome aborted is set to to increase following a decision released this morning. UK...
Philippa Taylor: A new wave of Down Syndrome babies face abortion. Test companies face higher profits
The NHS is considering introducing a new test for pregnant women that will make it much easier to detect and search out any babies with Down Syndrome (DS) or other chromosomal differences. A superficial reading of new screening recommendations suggests that...
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videos
It’s time our law’s caught up
with positive changes in attitudes towards people with Down’s syndrome
Heidi Crowter, a 26-year-old woman from Coventry who has Down’s syndrome, together with Máire Lea-Wilson from Brentford, West London, whose two-year-old son Aidan has Down’s syndrome, are challenging the UK Government over a disability clause in the current law which singles out babies with disabilities such as Down’s syndrome.

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