Pregnant individuals in Wales who participate in antenatal screening are offered a triple test. Since 30th April 2018, if those test results indicate a higher chance that their baby has a genetic condition, including Down’s syndrome, they will be offered an optional second screening Non-Invasive...
Tuesday 21 March 2017 marks the 12th anniversary of World Down Syndrome Day (WDSD), a global awareness day which has been officially observed by the United Nations since 2012. On this day events take place around the world to celebrate individuals with Down Syndrome (DS). To commemorate...
Sally Phillips’ son Olly is just like any kid. He likes ice cream and Barcelona football club. He’s energetic, loves to laugh and can often be found mucking about with his mates. He was also born with Down’s syndrome. In a new documentary, Phillips, who is...
"If we deny someone the chance to be born because we've decided they won't meet a predetermined measure of status or achievement, then we fail to grasp what it is to be human" “I’m going to do a blood test to see whether your son has...
Should a new test for Down's syndrome that is projected to lead to a profound increase in the number of children with Down's syndrome screened out by termination be introduced onto the NHS without people with Down's syndrome and their families being consulted and the...
Scores of parents of Down's children have demanded halt to programme They argued Down's was not a disease that needed to be eradicated Supporters of test say it will give women choice and avoid miscarriages Families fear a new test for Down’s syndrome will spark...
The Nuffield Council on Bioethics have set-up a working group to explore the ethical, legal and regulatory implications of recent and potential future scientific developments in non-invasive prenatal testing, including its use in both NHS and commercial services. They are currently gathering views and evidence on this...
We have just received the surprising news, to mixed reception, that Jeremy Hunt has been spared his job and will remain Secretary of State for Health. In response, this afternoon, we have launched an open letter to Jeremy Hunt demanding that his department stop ignoring the concerns...
When BETH BEAUMONT EPSTEIN was born her parents were told she would never learn to read. Now, at 15, she has aspirations to go to university. Her mother HENNY explains the need for less negativity towards Down’s Syndrome It’s 4pm on a weekday afternoon, and Beth Beaumont...
Nigel Evans MP has launched an Early Day Motion which calls on the Government to delay implementation of cfDNA screening until reforms are introduced that adequately deliver early and comprehensive support for children with Down’s and their families; and urges that a formal inquiry be...