Should a new test for Down's syndrome that is projected to lead to a profound increase in the number of children with Down's syndrome screened out by termination be introduced onto the NHS without people with Down's syndrome and their families being consulted and the...
Scores of parents of Down's children have demanded halt to programme They argued Down's was not a disease that needed to be eradicated Supporters of test say it will give women choice and avoid miscarriages Families fear a new test for Down’s syndrome will spark...
The Nuffield Council on Bioethics have set-up a working group to explore the ethical, legal and regulatory implications of recent and potential future scientific developments in non-invasive prenatal testing, including its use in both NHS and commercial services. They are currently gathering views and evidence on this...
We have just received the surprising news, to mixed reception, that Jeremy Hunt has been spared his job and will remain Secretary of State for Health. In response, this afternoon, we have launched an open letter to Jeremy Hunt demanding that his department stop ignoring the concerns...
When BETH BEAUMONT EPSTEIN was born her parents were told she would never learn to read. Now, at 15, she has aspirations to go to university. Her mother HENNY explains the need for less negativity towards Down’s Syndrome It’s 4pm on a weekday afternoon, and Beth Beaumont...
Nigel Evans MP has launched an Early Day Motion which calls on the Government to delay implementation of cfDNA screening until reforms are introduced that adequately deliver early and comprehensive support for children with Down’s and their families; and urges that a formal inquiry be...
People with Down’s syndrome, their families and advocacy groups are concerned that the 2015 abortion statistics released today show an increase in the number of abortions for Down’s syndrome. The statistics show an increase from 662 abortion for Down’s Syndrome in 2014 to 689 in 2015....
Successful Don’t Screen Us Out demonstration highlights discriminatory consequences of new prenatal screening, and underscores need for Down’s syndrome voices to be heard Individuals with Down’s syndrome and their families led a rally outside Parliament today, affirming the dignity and happiness that people with disabilities can...
OPERATIONAL NOTE – PHOTO OPPORTUNITY: Mon 18 April 10:30 – 12:30 (speeches at 12:00) Houses of Parliament, Statue of George V, Abingdon Street, London, SW1P 3JY Today individuals with Down’s syndrome and their families are protesting outside Parliament regarding “discriminatory” pre-natal screening proposals asking Jeremy Hunt not to ‘screen...
A DOWN syndrome charity founder is set for a Westminster protest in response to a screening programme which campaigners say could lead to "informal eugenics". Mother-of-three Maggie Hart will represent the North-East as she joins members of the Don't Screen Us Out campaign to speak at...