PRESS RELEASE - FOR IMMEDIATE RELEASE Landmark case against UK Govt over discriminatory abortion laws, women with Down’s syndrome vows to fight on Heidi Crowter, the woman behind a landmark case against the UK Government over the current discriminatory abortion law...
Creating a world where people with Down’s syndrome are equally valued
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our vision
We are a group of over 17,000 people with Down’s syndrome, their families and supporters who are actively working to build a United Kingdom (UK) where people with Down’s syndrome are equally valued and have an equal chance of being born.
Currently around 90% of babies found to have Down’s syndrome in the UK are aborted. This alarmingly high percentage is as a result of discriminatory legislation, policies and practice – as well as wider cultural attitudes towards life with Down’s syndrome.
our focus
We support the updating of UK legislation to ensure that babies with Down’s syndrome are not singled out by abortion law
We support a programme of medical reform to improve the delivery and quality of information and support provided to parents expecting a baby with Down’s syndrome
We highlight the negative impact that national screening programmes are having on increasing the number of babies that are screened out because they have Down’s syndrome.
We support reforms to UK legislation and policy to improve support and equality for people with Down’s syndrome and their families throughout their lives
media
Non-invasive prenatal testing: public and doctors should be consulted, says BMA
The BMA has the backing of doctors to lobby the government to undertake a consultation on the views of the public and medical profession on new non-invasive prenatal testing (NIPT) and whether limits should be set on its use. Disability advocacy groups welcomed the...
Press release: BMA joins chorus of voices calling for a full Government consultation on new pre-natal screening tests
People with Down’s syndrome and their families have welcomed the passing of a motion at the BMA Annual Representative (ARM) meeting which commits the BMA to actively lobby the government to undertake a consultation on the views of the public and medical profession on...
GOVERNMENT CONFUSION OVER NIPT TESTING HAS MAJOR IMPLICATIONS
Pregnant individuals in Wales who participate in antenatal screening are offered a triple test. Since 30th April 2018, if those test results indicate a higher chance that their baby has a genetic condition, including Down’s syndrome, they will be offered an optional...
Please write to your Welsh AM today – Don’t Screen Us Out letter re Down’s syndrome screening rollout
The Welsh Government has announced that they are rolling out a new Non-Invasive Prenatal Test (NIPT), a screening test for Down's syndrome, from May 2018. Unfortunately, the Government is going ahead with the roll-out without much of the due diligence that that should...
PRESS RELEASE: DOWN’S SYNDROME ADVOCATES PRAISE INCLUSION OF DISABILITY SUPPORT IN NEW TYNWALD ABORTION BILL, BUT ARE ALARMED AT INTRODUCTION OF ABORTION UP TO BIRTH FOR CONGENITAL CONDITIONS
Down’s syndrome advocacy group Don’t Screen Us Out have given a mixed review of the latest draft of an abortion Bill on the Isle of Man, praising its latest inclusion of information for parents who receive a pregnancy diagnosis of foetal impairment, but equally...
PRESS RELEASE: Down’s syndrome advocacy group fear introduction of abortion up to birth for disabilities on Isle of Man could lead to more children with Down’s syndrome being screened out by termination
Down’s syndrome advocacy group Don’t Screen Us Out are concerned that a proposed abortion Bill on the Isle of Man would worsen eugenic screening against children with Down’s syndrome and other foetal impairments. Whilst the current IoM abortion law already allows for...
New abortion statistics release shows abortions for Down’s syndrome up – set to get worse as Government rolls out new screening programme on NHS
People with Down’s syndrome, their families and advocacy groups are concerned that the 2016 abortion statistics released today show an increase in the number of abortions for Down’s syndrome. The statistics show an increase from 689 abortions for Down’s Syndrome in...
Celebrate World Down Syndrome Day 2016 at a charity screening of My Feral Heart
Tuesday 21 March 2017 marks the 12th anniversary of World Down Syndrome Day (WDSD), a global awareness day which has been officially observed by the United Nations since 2012. On this day events take place around the world to celebrate individuals with Down Syndrome...
Energy FM: Down’s syndrome group wants testing rethink
A Down's syndrome advocacy group is urging the Manx Government to overturn a decision to introduce a new pre-natal test to screen for the condition. Don't Screen Us Out is concerned that a non-invasive method for testing for Down's syndrome could lead to more...
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It’s time our law’s caught up
with positive changes in attitudes towards people with Down’s syndrome
Heidi Crowter, a 26-year-old woman from Coventry who has Down’s syndrome, together with Máire Lea-Wilson from Brentford, West London, whose two-year-old son Aidan has Down’s syndrome, are challenging the UK Government over a disability clause in the current law which singles out babies with disabilities such as Down’s syndrome.
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